My last entry was around Hallowe'en last year and it's almost St. Patrick's day. Why haven't I updated? Because I crashed. Physically, mentally, emotionally, and spiritually. Have you ever had brain fog so bad that you couldn't remember the very words you had just said? So bad that you stuttered inside your brain while thinking to yourself and couldn't recover the sentence? So bad that as you're riding in a car, you can't force your eyes to keep up with watching the lamp posts go by? So bad, you try to paste a permanent smile across your face, even though you have no clue what's going on. You're confused. You're stuck "inside your head" and can't get out. You know there's a reason for living, but you can't quite place your finger on it...
While all of this was going on, my hair was turning white (I just chalked it up to marriage LOL!!!), my hair was visibly thinning on top, my nails were crumbling, and even though I supplement my diet with virgin coconut oil and plenty of water, my skin was so dry it was cracking and I felt like I couldn't move my face. The lethargy was simply astounding. The irrational and uncontrollable anger was terrifying. I compiled a symptom list that is a mile long in an attempt to gather all of the pieces to the puzzle.
Oh, my God...and my poor family. I did literally NO housework in that whole time. Most families fight about money. We fought about laundry and a dirty kitchen and what I did all day long (sat on the couch WILLING myself to get up and be productive).
I still had the frame of mind to know that something was wrong. Really wrong. And after a couple of months of research, I discovered that it was my thyroid. But I also discovered that this is a field in the medical community overrun by ignorance and lack of willingness to change or learn. Most doctors don't know about optimal thyroid care. Endocrinologists and Internists are more interested diabetes and in doing the same ol', same ol' than reading some of the newer medical data and texts regarding this proper treatment.
Once I was sure I knew what the problem was, I armed myself with a huge symptom list and lots of knowledge, ready for a fight from my doctor when I asked for certain, specific tests that were "out of the norm." She was definitely skeptical, but I think the key was saying, "let's just rule this out..." Got my tests back a week later and sure enough, if I'd let her run the usual tests (TSH and T4 -- which are useless in diagnosing and treating thyroid problems, by the way), I would have received "normal" or "within range" results and I would still be at square one, living with and trying to deal with...well,
not living. Thanks to her willingness to test my
TSH, FREE T3, FREE T4, and Thyroid Antibodies, I not only received a clear picture, but a referral to any endocrinologist I wanted to see within our insurance network. I don't think
anybody wants a diagnosis, but this diagnosis answered over
10 years worth of questions and stopped my self-doubt cold. It was a blessing. I don't
want to have medical problems...but I
really don't want to be confused and self-loathing in my lack of understanding.
So what's the deal? I have Hashimoto's Autoimmune Thyroid Disease. This means that my thyroid gland is being attacked by my own body and I go through periods where I feel manic and fantastic and HAVE to run on my treadmill three times a day to control my anxiety to...what I described above when my thyroid is under attack (the other swing of the pendulum). Eventually, without treatment, the body kills the thyroid gland completely and you're dead. No hormones, no life. You keep slowly swinging back from the lows to the highs until this happens. It's worth stating that there
are people who have been misdiagnosed with bipolar and other mental illnesses when in reality, they have Hashi's. It's the "swing" that does it.
This disease is incredibly common and incredibly UNDER diagnosed. Doctors just don't know how to test for it,
nor do they know how to properly treat it.
I knew that I was in for a battle here in Texas to get "natural desiccated thyroid" treatment (Texas is notoriously difficult, so say the thyroid patient advocates). Most doctors will just prescribe a synthetic medication called Synthroid and shoo you out of the office with a pat on the head. Synthroid is a part of the essential hormones called "T4." T4 can, in functioning thyroid glands, be converted into T3 by the body (the T3 is what controls most of your symptoms). But with thyroid disease, the thyroid gland is typically NOT functioning properly and the little receptors inside this butterfly shaped gland are shutting down, thus unable to convert what is needed. In my case, 80% dead, according to the specialist I found. With T4 treatment (SO COMMON!), you're not going to feel any better. In fact, most people report feeling worse when they're unable to convert the hormones. Our best option? The thyroid gland from a pig. It has all of the hormone components we need in it ready for the uptake. But there's a problem. Finding a doctor who will prescribe this. Synthroid has become the standard for a million and one political reasons that I won't go into here, but if you're interested, the information is out there (see links at the bottom). Natural desiccated thyroid is the "all in one" option. I liken it to the "multi-vitamin" for your thyroid because it covers all bases and really,
truly helps you get better.
Anyway, mini lesson over. After calling 56 doctors (yes, literally, I called them all) in my city to see if they were up to date with their endocrine knowledge, I realized that I'd have to leave town for treatment. In a stroke of luck, I found a doctor 3 hours away who had good reviews online AND was in our military Tricare network. I set up an appointment (3 weeks out, sadly, the good ones are really busy). When the time came, we packed up the family, drove out to Odessa, and she started me on hormones that very day. Since there's a nationwide shortage of natural desiccated thyroid, she wrote me a prescription to have it compounded. The next morning, with my first dose of hormones, I had more energy than I'd had in months. Within four days, the brain fog was completely gone. Within a week...I'm motivated and cleaning out old boxes of photos and school work and dusting the ceilings and fans and vacuuming. I've also FINALLY lost some more weight. It's disturbing when you're doing everything right with no "cheating" for two months and the scale starts going back up (the thyroid controls your metabolism, too). I'm HAPPY. I feel better than I ever imagined I would now.
It's also worth saying that I've been living with this for the past 13 years, though it's only this past winter that it got
really bad. It all started when I got my first Depo shot. Knowing that Hashimoto's typically manifests after a hormonal event (childbirth, menopause, etc), it makes sense. Shortly after I received my first Depo birth control shot, I gained about 60 pounds (in just a few months) and was prescribed anti-depressants. I've been on and off anti-depressants ever since. Who knew that it was really my thyroid?!
Do you THINK you MIGHT have a problem with your thyroid? Go here to see a very Long and Pathetic List of Thyroid Symptoms. That whole website is a goldmine of information. It covers everything. If you have any questions, that is the place to go. There are loads of Yahoo! Groups for thyroid that are phenomenal, as well. As far as books go, Stop the Thyroid Madness: A Patient Revolution Against Decades of Inferior Treatment
by Janie Bowthorpe (the same woman who runs the website linked above) and Living Well with Hypothyroidism: What Your Doctor Doesn't Tell You... That You Need to Know
by Mary Shomon are excellent books.
Please note that I am NOT getting paid for any of this info. I was utterly FLOORED by my discoveries and simply want to help. If I can feel better, so can you.